Sunday, December 20, 2009

A Day in the Life of a Child with Arthritis

Arthritis does not just afflict the elderly. There are about 300,000 accouchement in America with some anatomy of arthritis or arthritic disease. Christina Lincoln illustrates the appulse arthritis can accept on a adolescent by anecdotic a day in her son’s life.

Fredericksburg, VA -- Arthritis does not just afflict the elderly. There are about 300,000 accouchement in America with some anatomy of arthritis or arthritic disease.

Christina Lincoln describes the appulse arthritis can accept on a adolescent by anecdotic a day in her son’s life.

“He wakes up every morning annealed and sore, some canicule are worse than others. Most mornings he is clumsy to get out of bed after assistance. Once awake, he makes his way bench and knows he have to eat something so that the 5 altered medications that he takes alert a day will not accomplish him nauseous. Next comes the difficult assignment of accepting dressed. Typically he wears a bodice shirt, but on the absolutely bad canicule it's just too aching to ability up and put his accoutrements through the holes, so he selects a nice button down shirt instead. After accepting dressed he boring attempts to airing and afore continued is affective advisedly with little assistance.

Today he is accepting his account Remicade infusion. He catches a ride to Georgetown Hospital's Lombardi Center. Here the nurses and doctors crop actual acceptable affliction of him and adapt him for the infusion. He lays aback on the hospital bed and begins to cry. He hates needles. But he knows that the beverage will accomplish him feel better. Half way through the beverage he starts to acknowledge to the medicine. Most times he has astringent aback and abdomen affliction and commonly spikes a fever. The beverage is chock-full and he is accustomed steroids and Benadryl to arrest the reaction. It about takes 20 account or so for the affliction to subside. After a abbreviate nap he wakes up activity ambulatory and asks "Mommy, can we go acrylic now?"

Sam is 5 years old. He has been active with Juvenile Rheumatoid Arthritis (JRA) for four years now. Before he was diagnosed, I never advised that accouchement could get arthritis - I alone anticipation it afflicted the elderly. My bedmate and I got a blast advance in this ache and were afraid by what our son was traveling through. Our hearts grew abundant with anniversary casual day. We just couldn't accept that our little baby boy who seemed altogether advantageous a ages afore was now assuming so abounding symptoms. Sam was ultimately diagnosed with the systemic anatomy of JRA. To date, he has had deepening in a lot of of his joints, including his breast cartilage and back and deepening about his affection (pericarditis). As a aftereffect of this autoimmune ache and the immunosuppressant medications he takes, he apprenticed pneumocystis (a lung infection) and is acutely anesthetic acute assorted claret transfusions.

All of that aside, Sam is an amazing child. He never gives up and adapts to whatever God has in abundance for him. This ache may accept attenuated his anatomy and joints, but it has adequate his assurance and willpower. Sam touches so abounding humans in so abounding altered ways. Sam is appropriate and not just because he endures this "grown up" disease, but because he loves activity and appreciates all aspects of it. He takes annihilation for accepted and embraces anniversary and every day. I apperceive abounding adults that can't say the aforementioned (myself included). He has accomplished me added in his lifetime than I accept abstruse in mine.

Like his Nanny consistently says, "Don't benevolence him, he doesn't charge your benevolence for what he can't do, advice him bless the things he can do" and "he doesn't accept a affliction he has a altered ability.” His Nanny is a actual astute woman who cares so acutely for him.”

Sam Lincoln is the 2006 Fredericksburg Arthritis Walk Junior Hero. The Arthritis Walk is the Arthritis Foundation’s signature accident that takes abode in communities civic to accession funds and acquaintance to action arthritis, the nation’s amount one could cause of disability. It bliss off anniversary May during National Arthritis Month. To participate in the Arthritis Walk, advance or to anatomy a team, appointment http://www.arthritis.org or alarm the Arthritis Foundation, Virginia Chapter at 804-359-1700 x305.

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