Advocates from above the country are advancing to affiliate on Capitol Hill this ages as The ALS Association hosts the 2009 National ALS Advocacy Day and Public Policy Conference.
Washington, D.C. (Vocus/PRWEB ) May 5, 2009 -- Advocates from above the country are advancing to affiliate on Capitol Hill this ages as The ALS Association hosts the 2009 National ALS Advocacy Day and Public Policy Conference. The three day conference, which will crop abode May 10-12 in Washington, D.C., provides the ALS association with an befalling to appear together, allotment their adventures and hopes, and appetite Congress to accompany the action adjoin Lou Gehrig's Disease.
This ache robs humans of the adeptness to move, to walk, to allege and ultimately breathe on their own The Advocacy Conference gives them the befalling to action aback and accomplish associates of Congress ally in the accomplishment to acquisition a analysis and a cure. Studies abide to appearance that ALS strikes aggressive veterans at about alert the amount as those who accept never served in the military It's important that associates of Congress and the accessible apperceive that by angry for humans with ALS, they aswell are angry for our heroes confined in the military. "Roadmap to a Cure" is the affair of this year's conference, which is the individual better anniversary acquisition of the absolute ALS community. Through advocacy, The Association is creating the roadmap that will advance to the analysis and cure for ALS.
Currently, there is no accepted could cause of ALS or able analysis for the progressive, neurodegenerative ache that took the activity of baseball fable Lou Gehrig, and which now bears his name. The ache is baleful in an boilerplate of just two to 5 years afterward diagnosis.
"This ache robs humans of the adeptness to move, to walk, to allege and ultimately breathe on their own," said Steve Gibson, carnality admiral of government relations and accessible address for The Association. "The Advocacy Conference gives them the befalling to action aback and accomplish associates of Congress ally in the accomplishment to acquisition a analysis and a cure."
Efforts fabricated at endure year's appointment led to a amount of cogent victories, including:
- The achievement of the ALS Registry Act, which establishes the aboriginal anytime civic ALS accommodating anthology at the Centers for Disease Control and Prevention;
- Continued allotment for the ALS Research Program at the Department of Defense, a affairs advised accurately to advanced translational analysis arch to a treatment; and
- Historic new regulations that authorize ALS as a account affiliated ache at the Department of Veterans Affairs, accouterment aggressive veterans with the ache acceptance to abounding benefits, including account affliction advantage and bloom care.
The about 1,000 humans - including about 100 humans with ALS - from throughout the country who are accepted to appear this year's appointment will seek to ensure that Congress continues allotment for these basic programs and that aggressive veterans accept the affliction they need, deserve and accept earned.
"Studies abide to appearance that ALS strikes aggressive veterans at about alert the amount as those who accept never served in the military," Gibson said. "It's important that associates of Congress and the accessible apperceive that by angry for humans with ALS, they aswell are angry for our heroes confined in the military."
In accession to Advocacy Day on the Hill, which takes abode on May 12, attendees accept the befalling to participate in a amount of added important appointment activities, including:
- Wreath Laying Ceremony - Veterans with ALS and their families will lay a band at the Tomb of the Unknown Soldier at Arlington National Cemetery to account all veterans who accept absent their lives to ALS in the account of their country (12:15 p.m., May 10, Arlington National Cemetery)
- Candlelight Vigil - the absolute ALS association gathers for a candlelight acuity on the accomplish of the Carnegie Museum to bethink the victims of ALS (8:30 p.m., May 10, Carnegie Museum, 801 K Street, NW, Washington, D.C.
- Educational blemish sessions that accredit attendees to apprentice the latest about the ache and how to become added able advocates (May 11, Renaissance, Washington, D.C. Hotel).
In addition, some of the world's top ALS researchers will be on duke Monday, May 11 for a analysis absolute affair to bear the latest account on agitative ALS analysis planned and underway, including analysis fabricated accessible through The Association's advancement efforts. Later in the day, a console of experts will allotment about the affiance axis corpuscle analysis holds for ALS.
Just above-mentioned to a affair with associates of Congress on May 12, advocates will accompany The Association in acquainted those leaders in Congress whose amazing efforts accept apprenticed the ALS association afterpiece to a cure. At the Celebration of Excellence Breakfast and Awards Presentation, The Association will present the Jacob K. Javits Public Service Award, called in account of the above New York agent who absent his activity to ALS, and the Henry A. Wallace Public Service Research Award, called for the above U.S. carnality admiral whose activity aswell was cut abbreviate by ALS.
During the reception, above Major League Baseball ALS-Star bullpen Curt Schilling and his wife Shonda will become the aboriginal inductees into The Association's Hall of Fame and will accept The Association's Hall of Fame Award.
The Schillings are accepting accustomed for their abiding and committed efforts in advocacy, acquaintance and fundraising, for decidedly impacting analysis and accommodating affliction programs provided by The Association to acquisition a could cause and cure for ALS, and to advance the above of activity for humans active with the disease, their families and caregivers.
The ALS Association is the alone non-profit alignment angry Lou Gehrig's Disease on every front. By arch the way in all-around research, accouterment abetment to humans with ALS through a civic arrangement of chapters, analogous multidisciplinary affliction through certified analytic affliction centers, and adopting government partnerships, The Association builds achievement and enhances above of activity while aggressively analytic for new treatments and a cure.
Contact:
The ALS Association
Gary Wosk, Manager, Media Relations
(818) 587-2241
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