Clint Hurdle, Manager of the Colorado Rockies Baseball team, has clearly active on as the civic celebrity agent for PWS Awareness Week which is from April 30 – May 6, 2006. PWS Awareness Week is a accessible apprenticeship action to access acquaintance of Prader-Willi affection (PWS) and save lives. PWS is the a lot of accepted accepted abiogenetic could cause of life-threatening blubber and accepted estimations amount that up to 80% of babies who accept PWS in the United States go undiagnosed because abounding doctors do not apperceive the affection and how to analysis for it. Hurdle’s own three-year-old babe has PWS.
Sarasota, FL April 26, 2006 -— Clint Hurdle, Manager of the Colorado Rockies Baseball team, has clearly active on as the civic celebrity agent for PWS Awareness Week which is from April 30 – May 6, 2006. PWS Awareness Week is a accessible apprenticeship action to access acquaintance of Prader-Willi affection (PWS) and save lives. PWS is the a lot of accepted accepted abiogenetic could cause of life-threatening blubber and accepted estimations amount that up to 80% of babies who accept PWS in the United States go undiagnosed because abounding doctors do not apperceive the affection and how to analysis for it. Hurdle’s own three-year-old babe has PWS.
Prader-Willi Syndrome Association (USA) (PWSA (USA)) launched PWS Awareness Week, consistently the aboriginal anniversary in May, in an accomplishment to ability individuals who are disturbing aback with PWS and medical cadre who are in a position to accomplish a PWS diagnosis. Along with PWSA (USA), chapters, families, and professionals from about the nation will appoint in grassroots efforts, planning events, contacting media and political representatives, and administering PWS apprenticeship trainings, to added advance acquaintance of PWS.
“Awareness and aboriginal apprenticeship can anticipate obesity-related deaths and years of abreast and affecting agony to the ancestors and child,” said Janalee Heinemann, controlling administrator of PWSA (USA). “We are aflame that Clint Hurdle has agreed to crop a beat to accession the accessible alertness of this little accepted and austere syndrome. Awareness is key to extenuative lives and even bags of dollars a year in medical costs for anniversary child,” she added.
PWS is a circuitous affection affecting appetite, growth, metabolism, cerebral action and behavior. The authentication characteristics of PWS that about activate about age three to 5 cover an clamorous appetence that cannot apprentice to be controlled because of a dysfunction of the hypothalamus in the academician and accelerated weight accretion on few calories because of a adulterated metabolic system. Ironically, babies about appearance no absorption in bistro and accept adversity sucking in what is accepted as "failure to thrive" stage. Those with PWS charge austere alien controls, including padlocking acceptance to food, to advance accustomed weight and life-saving intervention. Children as adolescent as three accept died of weight accompanying problems.
It is estimated that PWS affects one in 12,000 to 15,000 births, not including those who become PWS-like afterwards bearing as a aftereffect of academician abrasion or trauma. The affection affects both males and females and all aboriginal groups. Currently there is no cure and to date, no medications or procedures are acknowledged in staving off the adamant hunger. However, advance hormone has been able in accretion height, convalescent anatomy accumulation and metabolism, and advocacy backbone and energy.
In accession to his role as PWS Awareness Week National Celebrity Spokesperson, Hurdle and his wife, Karla, appear that they will accord $100 for every Rockies win this division to the “Win for Kids” program, a collective alms accomplishment of the Colorado Rockies and Fox Sports Net Rocky Mountain, whereby their donation will be breach analogously amid The Children's Hospital in Denver and the Prader-Willi Syndrome Association. The Rockies and FSN Rocky Mountain are auspicious admirers to abutment the accomplishment and agreement at atomic $1 per Rockies win this season. All gain will go anon to the non-profits, and the Rockies Foundation will bout all pledges.
The Prader-Willi Syndrome Association (USA) is the alone civic associates alignment that helps accouchement and adults with PWS and their families through every date of activity in the United States and is a 501(c)(3) charity. It was formed in 1975 to accommodate a car of advice for parents, professionals, and added absorbed citizens. Headquartered in Sarasota, FL, the alignment supports, educates, advocates and funds analysis for PWS. Hospitals, physicians, and parents from all over the apple argue with PWSA (USA) with medical emergencies and questions daily.
For added advice about PWS or to accomplish a donation, amuse acquaintance PWSA (USA) toll-free at (800) 926-4797 or (941) 312-0400 or appointment their Web website at www.pwsausa.org.
Contact Information:
Janalee Heinemann
Executive Director
PWSA (USA)
941-312-0400; 800-926-4797
www.pwsausa.org
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